Seoul National University Hospital
01.2019~Present
Overcame long-term hospitalization and complications from Nephrotic Syndrome.
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Contributed
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to a national rare disease network by donating 4 years of personal medical data.
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Participated
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in the hospital’s Cohort Study for Pediatric Rare Diseases as a speaker to inspire patients with rare diseases.
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Collaborated
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with hospital nurses and professors to share personal recovery cases and support treatment development.
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Participated
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in seminars and research projects on genetic diseases.
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Proposed
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“Art Therapy” sessions and provided art lessons to children and teenage patients.
Contributed personal treatment data to the Lee Kun-Hee Cohort Study, observed therapy’s transition to insured standard care, and identified immune-related links, sharing insights to support research and benefit young patients."
"A Five-Year Journey of Overcoming a Difficult Treatment Process & Contributions"
